Wednesday, November 19, 2008

no more appointments, please!

So, the other morning we were out running some errands and when we returned home, there was a message on the phone from a little girl for Grace. Apparently, one of her classmates was calling her to "chat" or something. Seriously, does this really have to start already? I told Grace that the girl had called, then I told her that she just needed to wait until she saw her at school and find out what she wanted. I don't know this girl at all, she might be really sweet, but really, they are just 5!

Sam has really been enjoying preschool and I am anxiously awaiting one of the other high schools to open up their registration for the spring semester so he can continue to go. I have had several reports from various groups/classes he attends and apparently, he is quite the good little boy in all accounts. I have been told that he is so helpful cleaning up and follows directions, is polite, and very enjoyable. Is this the same boy we live with? Anyway, it is always great to hear good things about your children.

Nate continues to get better in the gut department, but I am worried that he may be coming down with something else now. He has had a lot of mucus lately and is very off balance (he will fall down very easily) and has been having trouble going to sleep lately. It always seems like its something, doesn't it?

Last week, he had a speech evaluation done with a different therapist to see if he qualifies to receive speech services as well. Today, we had a meeting with the service coordinator to review his current goals and discuss the plan for the next 6 months. To my surprise, he did qualify for the speech services and will begin seeing the speech therapist in our home once a week. In addition, we will continue to see the special instruction, occupational therapist and the nutritionist on a monthly basis. Pretty much, this means that we will have someone coming to see him approximately twice a week. In addition to that, we also go to the pediatrician once a month for his Synagis shot (protects against RSV). Let's pray that he stays healthy and we don't have to have any other appointments in addition to all of this.

Life is busy, whether I like it or not! I am positive that there is no turning back now, because I have heard that it only gets worse as the kids get older. I guess I should enjoy it now, while I can!

Friday, November 14, 2008

A well formed update.

Probably more information than you ever wanted to know, but I am thrilled to announce that we have formed turds now! I won't even post a picture, but I am beside myself. For the first time in over a month, I haven't had to change Nate's bedding and clothes as soon as he wakes up in the morning as he has had poop all over everything. I am so hoping that we are on the road to recovery! Not only has Nate had the poop issues, but so did Sam. Now Grace seems to be the only one in the house with any remaining traces of the runs. At least she can take care of herself.

All righty then, no more potty talk from me. On to other business. Have I mentioned how great Nate is doing developmentally? Since getting his tubes in his ears, his speech has taken off in the last couple of weeks. He isn't really talking yet, but just to hear him babbling all the time is definitely a step in the right direction. I have always wondered why he has been such a quiet baby. Was it because he was on the ventilator for so long and never really cried or used his voice for several months? Maybe we cater to his every whim and he doesn't feel the need to ever whimper about anything. Whatever the case, he has always been extremely quiet, not much of a cryer or noise maker at all. He just got a speech evaluation this week to see if he qualifies for speech services in the First Steps program. He can say the b, d, m sounds pretty good and has quite an extensive vocabulary of words all beginning with the letter "b". He is now able to make some animal sounds and has become quite the chatterbox. He has also been stacking blocks quite nicely and likes to put anything "in and out". He has even taken up scribbling on paper. Most of these types of play are associated with children that are younger than him, but it is good for us to see a natural progression of skills. It eases me when these skills come naturally and that we haven't really seen much of a plateau of developmental milestones that we should worry about his future. He will catch up eventually, I'm sure.

Some pictures that I haven't posted. Halloween, which Nate was starting to get pretty sick, and some of our leaves from last weekend. Have a great one!

Thursday, November 6, 2008

Home Sweet Messy Home

We are home again! Nate was discharged on Tuesday afternoon and nothing was ever determined to be the cause of his sickness. I am still going with my theory, but I do think that he was dehydrated and did need a lot of fluids that we weren't able to get in him. He also received three rounds of antibiotics for "whatever" it may have been as a precautionary measure. I sure was glad to get out of there, it made me more uneasy the longer we were there, as I was sure we would pick up something else in that germ infested place. As for now, we will practice handwashing and sanitizing and pray that this thing will be gone!

Life has resumed and I am trying to catch up from being at the hospital for a few days. The house is a disaster (what's new?), I am going to try to actually cook dinner tonight for a change, and we are still in our p.j.'s. I can only do so much, you know! It was nice for a change to not have anywhere to be today.

Thanks for checking in and I hope to have some cute pictures and more exciting things to report in the next few days.

Monday, November 3, 2008

Bugs, Bugs and more Bugs

Did I mention in my last post that I am up to my eyeballs in #?&# (aka poop)? I sure hope we are on the the way to ending this bug! Anyway, things have been rather crazy around here as of late. Nate has been ill for quite some time, I believe he probably got some type of rotavirus or something and has had the poos. Sam also has the same thing, only his started two weeks ago instead of three. Then on Tuesday last week, I think Sam and Nate both contracted some type of flu bug and both were puking. That only lasted for a day, thank goodness. On Wednesday, I took Nate to the doctor and was ordered to collect samples of poo and bring them in to be cultured for various bugs. In the wee hours of Thursday morning, I woke up puking and spent the day in bed. On Friday, Nate woke with a temperature that I could not get to go away. I was able to get the poo turned in on Friday afternoon. Saturday, Nate still had the fever and was really acting sick. We went to urgent care and waited literally all day until it was so late at night, they were going to admit him to the hospital. We declined and decided that we would rather him go to a different location. At 10 p.m., we took our babe to Children's Mercy downtown and he was admitted. He was a little dehydrated and they wanted to continue to look for the cause of infection. After receiving fluids, x-rays, a catheter to gather urine samples, swabbed in his throat, a tube shoved up his nose for a sample of what's in there, a spinal tap to test for meningitis, nothing has shown up. Luckily, today, his fever has broken and his IV fluids have been decreased. He has started a round of a broad spectrum anitbiotic being given to treat whatever bug he might have.

Personally, I think all of this is a virus and the drugs aren't going to do a whole lot, but I guess it's worth a shot. Funny thing is that all of this started with bunches of poo, and since going to urgent care on Saturday, the kid hasn't pooped again! Go figure! All right, he did finally go last night, so they were happy to get a sampling of that as well. We are making it right now, but things are a little chaotic. Someone needs to be at the hospital at all times. Sam has preschool and Grace has school and we also need to disinfect the entire house! Luckily, the weather is beautiful and I am able to open all the windows and doors and air out the place.

We are hopeful that Nate will be discharged tomorrow, but have been told that he needs to be eating and drinking more before they will let him go. He has received so much IV fluids, that his eyes are almost swollen shut because he is so puffy. No wonder he doesn't want to drink anything, you wouldn't either if you were so bloated. He is pretty much being held captive to his bed, as the IV tubing and the other heart/lung monitor cords are very short.

If you think about it, say a prayer for him to start feeling better and for all the bugs to vacate our premise!